Chronic Intestinal Pseudo Obstruction & Polyneuropathy

CIPO & Polyneuropati AMSAN

Tuesdays tritesse

It has been a hard couple of days. Today it was once again time for my B-vitamin injection and "rebuffing" of the Mic-Key one button. It has to have the sterile water inside replace once a month. Luckily my husband found the time to give me a ride forth and back. Half an hour upon my return, the physiotherapist came to pick up my wheelchair, because the handle had been giving me a hard time. It took a couple of hours to fix it, time where I was totally bound to my bed. Normally I am bedridden a lot of the hours throughout the day, but when You literally cannot move, You can get an urge to do just that. Well I finally got my wheels back and were able to a bit of households work and my daily training program. Since all my automatically movements are gone, it is of an essence that I work thoroughly throughout my body. Every movement has to be thought out from a to z. Nothing comes by itself, even writing this text, takes an effort. That's why my brain is all worn out by the end of the day. The daily workouts extend to several brain training programs. That is one of the things I am grateful for, my mind working perfectly throughout all of this mayhem of a disease. Furthermore I am so glad that I got my electrical wheels last week. It (the electric wheelchair; Ruby Red) broaden my sense of being able to handle certain things myself. Without being in need of someone pushing the wheelchair. The ramp outside the house is still a bit too steep for me to force alone. In due time, it is supposed to be fixed, so that I can manage to get in and out of the house all by myself.

Tomorrow Today
is Yesterday.
Tak for besøget og på gensynet. Thank You for visiting and welcome back.
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